Press Release

Envision Pharma Group and Ectodermal Dysplasia Society Develop Patient Initiative Booklet Aimed at Children About Genetic Disorder

Envision Pharma Group has collaborated with the Ectodermal Dysplasia Society in order to develop a patient information booklet aimed at children that raises awareness and support for the disorder.

“Everybody’s different: An introduction to Ectodermal Dysplasia” has been designed for children aged 4+, with and without ED, and allows parents and schools to explain the condition in child-friendly terms. It facilitates empathy and gives children the ideas and motivation to then help their peers.

Ectodermal Dysplasias are a group of genetic disorders affecting the development or function of the teeth, hair, nails and sweat glands. As the condition often has obvious physical symptoms, and children need extra support, they can be subject to bullying or exclusion by their peers.

Envision utilised its services in patient-focused content strategy, copywriting, illustration and graphic design to work closely with the charity to co-create the booklets that help children explore visible and invisible differences – as well as thinking about the emotional impact of those variances.

As a result of this collaboration, Envision is now among finalists in the Global Healthcare and Pharma Advertising Awards for the Ectodermal Dysplasia booklet, under a “Health Awareness and Advocacy” category.

Creative Strategy and Content Director Sarah Ings from Envision added, “We have created something that will provide many discussion points for children and their peers. The key to its development was a close relationship and co-creation process with those experienced in the condition. Co-creation is a fundamental part of the development of patient materials, and we are honoured to have been able to work with the charity in this way.”

The Ectodermal Dysplasia Society work together with people who have ED, their families, researchers, health and other professionals to develop and share expertise, increase awareness and understanding, and assist with the day-to-day management of ED.

ED Society CEO Diana Perry commented, “My first approach to Envision was to have an age appropriate children’s leaflet produced to help children explain to their peers the genetic condition they have, but over time this evolved into this fantastic booklet. We are so grateful to Envision for their passion and dedication in creating this, which will not only help children affected by ED but all children who are a little different. It has been a huge pleasure working alongside Envision’s team on this project.”

To access a copy of the patient information material and to find out more, click here.